The first Biobank for rare metabolic diseases on the African continent was established in 2019.
The first Biobank for rare metabolic diseases on the African continent was established in 2019.
This document sets out the governance framework for membership to the Medical Biorepositories of South Africa (MBirSA). It defines membership categories, eligibility criteria, the application process, rights and responsibilities, and terms of membership. This governance structure aims to ensure inclusive, equitable, and transparent participation in MBirSA’s activities, in alignment with its mission to support ethical, effective, and sustainable biorepositories in South Africa.
MBirSA offers four categories of membership:
Biorepository membership is open to any biorepository operating within South Africa that supports and aligns with MBirSA’s principles and objectives.
Institutional membership is open to South African institutions (e.g., universities, research councils, hospitals) that oversee or house multiple biorepositories.
Individual membership is open to professionals, researchers, ethicists, policy experts, or community advocates with a demonstrated interest in medical biorepositories in South Africa.
Associate membership is open to individuals or institutions located outside South Africa who support the aims of MBirSA and wish to collaborate or contribute to its work.
A biorepository and/or institution that may be considering membership, can join as an observer for one year only.
Membership remains valid until such time as either the member or MBirSA chooses to terminate it, subject to continued eligibility, active engagement, and payment of membership fees (if applicable).
Membership may be suspended or terminated if: