Survey on the Current State of Biobanks in Africa

Survey on the Current State of Biobanks in Africa

Biobanking, a cornerstone of modern biomedical research, has seen significant growth worldwide, including across Africa. The proliferation of biobanks is key to advancing both basic and translational research, with the potential to develop novel treatments and disease prevention strategies. However, as this field expands, there are important challenges and opportunities to address, particularly in the African context.

To gain a comprehensive understanding of the current state of African biobanks and their influence on research, Sandra Nanyonga, student at Universite Côte d’Azur with the support of Dr Zisis Kozlakidis, Head of Biobanking and Laboratory Services at IARC/WHO, Lyon, France and Dr Daniel Simeon-Dubach, biobank consultant, Walchwil Switzerland, is conducting an important survey. This survey is part of a study which will then be refined and expanded to a wider audience. The aim is to assess the progress, challenges, and opportunities in biobanking across Africa, ultimately providing insights to inform targeted solutions and support the African biobanking community.

Biobanks provide researchers with access to a wide variety of heterogeneous samples and data, streamlining research efforts and reducing the time and resources required for collection, storage, and maintenance. However, to maximise the potential of biobanks in Africa, several prerequisites must be met. These include ensuring broad, fair, and equitable access to samples and data, while also addressing ethical concerns such as privacy and confidentiality. The Human Heredity and Health in Africa (H3Africa) initiative is an example of how scientific collaborations can help achieve these goals.

In recent years, Africa has seen a substantial increase in the number of biorepositories, with some regions implementing biobanking guidelines that have significantly improved regulatory oversight and management practices. These developments signal a promising future for biobanking on the continent. However, there is still much to be done to address the unique challenges faced by African biobanks and to capitalise on the opportunities they present.

The insights gained from this survey will be instrumental in developing strategies to address existing challenges and leverage opportunities for the growth of biobanking in Africa. 

We are reaching out to our network to request your participation in this survey. 

Questionnaire

MBirSA Membership

1. Introduction

This document sets out the governance framework for membership to the Medical Biorepositories of South Africa (MBirSA). It defines membership categories, eligibility criteria, the application process, rights and responsibilities, and terms of membership. This governance structure aims to ensure inclusive, equitable, and transparent participation in MBirSA’s activities, in alignment with its mission to support ethical, effective, and sustainable biorepositories in South Africa.

2. Categories of Membership

MBirSA offers four categories of membership:

  1. Biorepository membership
  2. Institutional membership
  3. Individual membership
  4. Associate members
  5. Observer status

2.1 Biorepository Membership

Biorepository membership is open to any biorepository operating within South Africa that supports and aligns with MBirSA’s principles and objectives.

Rights of membership

  • Eligibility to nominate representatives to MBirSA working groups and committees.
  • Opportunity to comment on and vote on any MBirSA consensus statements or other MBirSA policies developed.
  • Access to MBirSA resources, training, and capacity-building activities.

Responsibilities:

  • Commitment to MBirSA’s Code of Conduct
  • Timely payment of membership fees (if applicable).
  • Appointing a designated representative to engage with MBirSA on behalf of the biorepository.
  • To indicate their membership of MBirSA and inclusion of the MBirSA logo on the biorepository website.

2.2 Institutional Membership

Institutional membership is open to South African institutions (e.g., universities, research councils, hospitals) that oversee or house multiple biorepositories.

Becoming a member:

  • The institution applies as a single entity and designates a primary liaison.
  • All biorepositories under the institution’s auspices automatically fall under the membership.

Rights of membership:

  • Eligibility to nominate representatives to MBirSA working groups and committees.
  • Access to MBirSA resources, training, and capacity-building activities.

Responsibilities of membership:

  • Commitment to MBirSA’s Code of Conduct.
  • Timely payment of membership fees (if applicable).
  • Oversight of affiliated biorepositories’ compliance with MBirSA principles
  • Facilitation of internal coordination and communication with MBirSA.
  • To indicate their membership of MBirSA and inclusion of the MBirSA logo on the institution’s website.

2.3 Individual Membership

Individual membership is open to professionals, researchers, ethicists, policy experts, or community advocates with a demonstrated interest in medical biorepositories in South Africa.

Rights of membership:

  • Eligibility to nominate themselves to MBirSA working groups and committees.
  • Access to MBirSA resources, training, and capacity-building activities.

Responsibilities:

  • Commitment to MBirSA’s Code of Conduct.
  • Timely payment of membership fees (if applicable).

2.4 Associate Membership

Associate membership is open to individuals or institutions located outside South Africa who support the aims of MBirSA and wish to collaborate or contribute to its work.

Rights of membership:

  • Eligibility to nominate themselves to MBirSA working groups and committees.
  • Access to MBirSA resources, training, and capacity-building activities.

Responsibilities:

  • Commitment to MBirSA’s Code of Conduct.
  • Timely payment of membership fees (if applicable).
  • To indicate their membership of MBirSA and inclusion of the MBirSA logo on the website.

2.5 Observer status

A biorepository and/or institution that may be considering membership, can join as an observer for one year only.

Rights of observer status:

  • Access to MBirSA resources, training, and capacity-building activities.

Responsibilities:

  • Commitment to MBirSA’s Code of Conduct.
  • Timely payment of observer status membership fees (if applicable).
  • To indicate their membership of MBirSA and inclusion of the MBirSA logo on the website.

3. Application and Admission Process

  1. Applicants must complete the official MBirSA membership application form and submit any supporting documentation as required.
  2. All applications are reviewed by the MBirSA Steering Committee for decision.
  3. Successful applicants will receive formal notification and a welcome package, including the MBirSA Constitution and any applicable membership fees.

4. Duration and Renewal of Membership

Membership remains valid until such time as either the member or MBirSA chooses to terminate it, subject to continued eligibility, active engagement, and payment of membership fees (if applicable).

5. Termination or Suspension of Membership

Membership may be suspended or terminated if:

  • The member is found to be in serious breach of MBirSA’s Constitution or Code of Conduct by the Steering Committee.
  • The biorepository or institution is no longer operational.
  • The member voluntarily withdraws from MBirSA in writing.

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